Saturday, the 8th, Eliza turned four months old! It's so incredible to think we've been doing this for 4 months now and how much has happened. She's an amazing little baby now. She makes silly faces and goes from smiling to looking very concerned in a second. It cracks us up! Everyone comments that she looks just like Glenn. :) She's so much more interactive with us and loves to be held. Her face has filled out a lot and she has fat rolls!! One hundred percent different than four months ago or even two.
I brought in her baby book to the hospital the other day to try and fill in some parts while she slept (didn't happen!). A few of us ended up looking at some of the early pictures and just marveled at the changes. It truely is amazing how far she's come. She is such a fighter. I am so thankful for the dedicated staff that have worked so hard to keep a close eye on Eliza and make this miracle possible.
She has made it to two kilograms finally! She weighed in at 2060 last night making her 4 lbs 8 oz! She should make it to 2.2 kilos (the magic number that the surgery team will begin thinking about operating) by the end of this week - so we are hoping that she will be scheduled for surgery the beginning of next week (~ Jan 18). Just one week away! Once she has her bowels reanastomosed (or reconnected) we should be on the fast track to coming home. It just all depends on how she recovers after surgery, if she can start eating enough, and gaining weight consistently. I'm hoping somewhere around 3 weeks from now!
In other news, they did a couple of ultrasounds last week on her pelvis and spine to follow up on concerns about her hormone levels. Fortunately her spine looks perfectly normal. On the pelvic ultrasound they found a small cyst around where her left ovary is but they are unsure if it is an ovarian cyst or something that was left over from her previous abdominal surgery. They will be keeping an eye on this and fortunately it is something they can do as an outpatient.
Less positively, there was a mishap that happened recently with her meds. She was given her IV doses of steroid medication (hydrocortisone) by mouth instead. Luckily she did not have any major reactions to this (just some symptoms that we attributed to reflux). As soon as it was discovered the nurse practitioner gave us a call since we had already left for the evening. She told us that this would initiate a series of events to help identify the reason and hopefully make it more difficult for something like this to ever happen again. We know human error is always going to play a part but it's very scary to think about what could have happened if had been a more serious mistake...so we just won't think about that. :) This must be one really scary part of the nurses' (and all medical providers) jobs!
One more note, Eliza's BFF Claire went in for surgery today on her liver. Surgeon said that the surgery went well (hooray!!) so now we are all hoping that Claire's recovery is very speedy and easy and the girls will be reunited in the same room again soon before they both start trying to make their escapes home. :)
yay for 2 kilos! Keep eating and growing Eliza! Happy 4 month birthday too! Today Remi is 3 months. We are dealing with the same results from an ultrasound. They think it is a cyst, but it might have gotten a little bit bigger so now they want to do an MRI to get a better look at it. So we will be visiting Duke again soon and I believe spending the night because they need to sedate her :(. Keeping our fingers crossed that it is just a cyst. Hope all continues to stay on track for Eliza. We will continue to pray for you all.
ReplyDeleteWhat's up with these 3 girls and cysts?!?!? Happy Birthday Eliza!
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