So the last post didn't get published until today even though Glenn wrote it last night, so of course there has been more changes since those words were written. The one thing consistent with this whole experience is just how much everything changes... constantly.
The attempt at the axillary PICC line last night was successful! This means no surgery tomorrow and she can get IV nutrition again. Hopefully this will change our 2 week streak of stagnant growth. Back when she was consistently gaining an ounce a day we had calculated out that the earliest she could come home was mid to late Feb. Now I hate to think how the current problems have impacted that - two more months is already more than I can bear to think about. Since she was continuing to dump, her food per day has been reduced and they'll be giving her more calories in the IV. I hate that for her since I think she already feels hungry with the amount she was on. More talk of changing her feeding cycle as well - from continuous to on two hours, off one (3 hour cycle)... which they say is a step towards a "term baby" eating pattern.
Speaking of term baby, Eliza practically is. Tomorrow she is 39 weeks gestational age - can you believe it? I can't!! Thinking about it brings on a whole new set of emotions and worries that I won't go into now. :)
Glenn's at the hospital for me today and requested I take the day off. I think he may be a little concerned for my sanity (me too, actually! ;) It's been really hard but I've managed to stay away from the hospital so far today. I was able to get my hair cut and get a massage (killer back pain lately... I really should stop being so stressed, huh?) My hair stylist was very thankful to Glenn as well since I've ended up canceling the last 2 appointments I had because of goings-on with Eliza. Making scheduled plans outside the hospital (or even in it, sometimes) is still an almost impossible thing with all that happens day to day. I rarely get to see friends because of this and miss them much!
Glenn just texted to say he'll stay at the hospital tonight and see me tomorrow since Eliza is only content when he holds the paci in her mouth..... she sounds like a real baby now doesn't she?
Will post pictures soon!
I hope and pray that things continue to move in the right direction, even if it's little by little! I think of you every day and say a little prayer. I can't imagine how insane you are feeling, I was going nuts just staying home for a couple of months. I just can't imagine. I love you!
ReplyDeleteSo glad to hear that she has IV access again and can resume growing. You two are an amazing team. Eliza is lucky to have her Mommy and Daddy watching over her care until they can do it all on their own :) Just keep taking it one day at a time...she'll be home at the perfect time.
ReplyDeleteI've been thinking about you nonstop during this holiday season and check your blog often for updates! Please know we are thinking of you all and praying for you. Eliza is beautiful and I love your new profile pic. Such a great family! Stay strong and enjoy some me-time. You deserve it more than anyone I know.
ReplyDeleteI like the new profile picture, Eliza looks so cute in her Christmas hat. I'm glad the new PICC line is in so we can all say again "Grow Baby Grow". Love you all and we will see you soon. Nana
ReplyDeletei know the feeling of trying to make appointments outside of the hospital. I never brought myself to it and are still having a hard time. You all as a family are so strong and so lucky to have one another! Eliza is so lucky to have you both for parents! She is a strong little girl and will keep fighting harder than you can imagine. Hang in there, she will be home soon! Hope to see you all soon.
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